What's On Your Holiday Wish List That Could Improve Your Life With Amyloidosis?
Yes, and sometimes I feel ashamed of myself when I complain of this pain or that adverse reaction. Or find myself mired in wondering why me? Or questioning how God moves among us and allows his creatures to suffer, human or otherwise. All questions that we have asked ourselves since diagnosis. How dare I seat myself at their table, when God has bless me with a great life, wife,son, home, and these peeps will never know of these things, unless we find a cure. Treatment is not acceptable for me in this day and age. We have the means and tech to accomplish anything, but they can not continue to rape our medical system with treatments. We need a cure! But I have a feeling that there are powers that have resisted finding a cure, as it will cut off the gravy train, chemo treatment has become. Too many big shot Dr, lawyers and insurance ppl would find themselves in unemployment line if cancer was cured. They will not let that happen, so here we are.
I will be very happy with any of the wishes mentioned or an invitation to a clinical trial for an Rx that removes the plaques.
I agree with everyone except Chris, with prayers and new medications this will not be our last Christmas. Merry Christmas and Happy New Year. A better 2024 for all amyloidosis patients.
I just want to stay exactly as I am right now ... Blood tests done the other day and the results Monday and so today is Saturday . Fingers crossed and rocket on 2024 and more of the same .. Merry Christmas to ALL and yes lets trust we hold it all together for the coming year.👍🏻
Okay the results are in and I am just fine ... Blood pressure a tad high but normally is when getting results and looking at the charts. Go play up for another 4 months is the call so we shall .. woo woo
...turkey, ham, mashed taters & gravy, family, friends...don't get no better than that...
And a good dog to share it all with!
I Have Very Severe Poly Neuropathy What Can I Do? I Have To Use A Walker Nerve Damage Re EMG. Sudden Severe Pain Back Of Legs
I've Been Subscribed Jardiance Along With My Vyndaquel. Is Anyone Else Using This Drug, And Have You Seen Results?
I've Been On Tafamidis 3yrs Now. Thought I'd Be A Goner By Now. Must Be Working . Anyone Else Passing The 3yr Mark On Tafamidis?