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Wtattr Can We Use Acoramidas
Many doctors are too biased by their "standard of care" dogma. The clinical evidence from a few years of Acoramidis trials versus Tafadamis trials doesn't support the idea that you should continue… read more
Does Anyone With Familial ATTR Have Both Liver And Cardiac Involvement? What Has Been Your Treatment Protocol, Progression ? Thank You!
Yes, individuals with familial ATTR (hereditary ATTR amyloidosis) can have both liver and cardiac involvement. The liver produces abnormal TTR proteins, which can lead to amyloid deposits in various… read more
Anyone On Vyndamax 61 Mg?
How long? What was the benchmark? Have you been retested to see your effectiveness of this drug?
I was find but it caused liver problems and we told to stop
Tafamidis Therapy Prophylactically?
Recent diagnosis from bilateral CTS. Mayo says ATTR, Cardiologist suspects wild type. Kidney, liver cardiac tests normal. Anyone receiving tafamidis therapy to prevent further progression of disease. In my option, seems tragic that a patient has to progress to some level of cardiac failure before starting treatment if Vindamax or other tafamidis can slow progression.
I have PN as well. Entire left side, and now moving to my face this morning. My son got his meds in 3 days. It will be a week this Tuesday for approval of grant. How do you pay for med?
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