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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 5 search results for "Revlimid" in Q&A. To see all results and access other features, sign up for free.

Who Has Had Positive Results With Revlimid? My CyBorD+Dara Was Unsuccessful.

A MyAmyloidosisTeam Member asked a question 💭
Valdez, AK

I have AL Amyloidosis; only kidney involvement.

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I'm Nervous. I Will Be Starting Revlimid Andaratumumab For AL Amyloidosis, Also Have SMM In Just Over A Week. What Should I Expect, Feel? N

A MyAmyloidosisTeam Member asked a question 💭
A MyAmyloidosisTeam Member

Knowing that we all are different, my experience with chemotherapy was quite good. Other than feeling like a human pin cushion, I sailed through with minimal discomfort. If you have resulting… read more

Did Anyone Lose Muscle Strength And How Did It Take Before You Got It Back? Also To Start Building Muscle Again?

A MyAmyloidosisTeam Member asked a question 💭
Turlock, CA
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A MyAmyloidosisTeam Member

Sad, sorry to hear that. What meds/ treatment are you on. I will be starting daratumumab and Revlimid very soon.

Hi, Thanks For Reading! I Am Currently In Remission From AL Amyloidosis.

A MyAmyloidosisTeam Member asked a question 💭
West Hartford, CT

I'm just wondering if anyone's AL has recurred after remission, and what the next treatment usually is. (I can't do the bone marrow transplant.) Thanks!

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A MyAmyloidosisTeam Member

That's good news. It's such a roller coaster. I thought the stem cell treatments really worked?...but glad to hear about the Revlimid! My numbers are still good but I'm supposed to stop treatment… read more

After 24 CyborD +D Treatments I’m Still Not In Full Remission, Or CHR. I Have AL Amyloidosis. What Is Next? How Can I Get Into CHR?

A MyAmyloidosisTeam Member asked a question 💭
Chandler, AZ
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A MyAmyloidosisTeam Member

Hi Jen
Meant to get back to you yesterday. I apologize for the delay.
I did 3 Cycles of CyBorD.
4 cycles of Dara, Velcade and Dex
8 cycles Carfilzomib, Revelimid and Dex