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Burning Sensation In Mouth.....

A MyAmyloidosisTeam Member asked a question 💭
New Jersey City, NJ

Good morning all! About 2 days ago I began having mouth pain. I can best describe it as if I drank something very hot. My tongue constantly has a burning sensation, as well as the roof of my mouth. It is painful to brush my teeth and eat. Has anyone diagnosed with Amyloidosis had these symptoms? Is there anything I can do to ease the burning sensation? I have not changed mouthwash, toothpaste, etc and I did NOT drink any hot beverages. I am a bit fearful due to my Edwards Sapien aortic… read more

January 20
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A MyAmyloidosisTeam Member

Thank you so much, Mary. I will talk to my family doctor and see if he will prescribe or recommend the oral nystatin. Thanks for taking the time to respond.😍

January 21
A MyAmyloidosisTeam Member

My hubby had a similar problem, they diagnosed it as oral thrush. He was prescribed oral nystatin and it works. He still has milder symptoms and uses it everyday to keep it in control. Hopefully this info might help. Good luck!🙏

January 21
A MyAmyloidosisTeam Member

YES!!! I had this too. That’s how I described it. Like drinking hot scalding cup of coffee. People & the drs couldn’t understand! I really tried everything. It was very difficult to eat. Some days salty foods were good some days it was sweet. With time and treatment it has subsided. My taste still isn’t great. Chocolate taste awful. It is much better than it was though. I try to brush my teeth before and after meals. I use arm & hammer peroxicare. I’m sorry I don’t have any good tips. Nothing really worked I just had to push through. Eat whatever you can eat. I also take prophylactic Valtrex as not to get mouth sores from treatment.

By the way… just thought I would mention it… do you have someone that can take care of Ricky if you can’t? I know we don’t like to think of these things but it’s important. Don’t expect people to step up. I have guardians for my kitties and a plan in place. I was kind of sad thinking about it but now it has given me peace of mind. Sorry if I overstepped. I used to do animal rescue and saw too many seniors end up in shelters.

Peace 😘

January 21 (edited)
A MyAmyloidosisTeam Member

Thank you, Cleve. I hope I will be as lucky as you and it will go away as quickly as it appeared. Have a wonderful day!

January 20
A MyAmyloidosisTeam Member

Hi Sandy,
I do not have an answer for your specific question. However, I do have an
intense but brief burning sensation in my left forearm periodically. It
goes away as quickly as it came

January 20

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