Burning sensations in the mouth, including the tongue and roof, can sometimes be linked to amyloidosis, particularly if amyloid deposits are affecting the tongue or surrounding tissues. This condition, known as macroglossia, can cause tongue pain, burning, or difficulty chewing and swallowing. Given your history and the Show Full Answer

Burning sensations in the mouth, including the tongue and roof, can sometimes be linked to amyloidosis, particularly if amyloid deposits are affecting the tongue or surrounding tissues. This condition, known as macroglossia, can cause tongue pain, burning, or difficulty chewing and swallowing. Given your history and the PET/CT findings, it’s essential to follow up with your healthcare provider for further evaluation.

To ease the burning sensation, you might try:

1. Rinsing with a mild saltwater solution to soothe irritation.
2. Avoiding spicy, acidic, or very hot foods that could worsen the discomfort.
3. Using a soft-bristled toothbrush to minimize pain while brushing.

Given your Edwards Sapien valve and the risk of infection, it’s critical to consult your cardiologist or hematologist promptly. They may recommend further tests or a biopsy to investigate the PET/CT findings and rule out amyloid involvement or other causes. Early intervention is key to managing symptoms and preventing complications.

 This AI-generated response comes from MyAmyloidosisTeam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.

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