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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Medicine Are You Taking For GI Affects Of Amyloidosis

A MyAmyloidosisTeam Member asked a question 💭
December 27, 2024
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A MyAmyloidosisTeam Member

I keep adding more fiber! Could be why I've been feeling wayyy to full lately and can hardly eat a normal size meal.
I feel I'm constantly needing to adjust my diet . I'll try out these tips you've mentioned!

December 30, 2024
A MyAmyloidosisTeam Member

Finally, the chemical structure of Nattokinase is not at all similar to Tafadamis. They have vastly different effects and purposes. Tafadamis is a protein stabilizer drug, Nattokinase is not. Diflusinal is much more similar to Tafadamis than Nattokinase. Diflusinal research is what led to the development of Tafadamis at Stanford University.

December 29, 2024 (edited)
A MyAmyloidosisTeam Member

I eat a low fiber diet. When I’m feeling good I try to add a little. Potatoes and bananas are my best friends. With that you have to be careful about your potassium. Potatoes & bananas will raise that. Try not to drink too much liquid with meals. Drink either 1/2 hour before or a hour after meals. Medicines I take are lomotil and Imodium. Sometimes I take zofran which helps with nausea but also causes constipation. I used to take a lot more but it has gotten better from where I started thank God. Also I buy my pull ups from parentgiving.com they’re a little expensive but it is worth the piece of mind. You have to buy for fecal incontinence not urinary incontinence. You should also consult with a nutritionist. Good luck!

December 30, 2024
A MyAmyloidosisTeam Member

Nattokinase can cause an existing clot to dislodge, which can lead to a stroke or embolus. It can also increase the risk of bleeding in people with coagulation disorders or those who are undergoing anticoagulant, fibrinolytic, or antithrombotic treatments.

December 29, 2024
A MyAmyloidosisTeam Member

For gastrointestinal (GI) symptoms caused by amyloidosis, treatment typically focuses on managing the symptoms rather than directly addressing the amyloid deposits. Depending on the specific GI issues, the following approaches may be used:

- For diarrhea: Avoid high-fat, high-sugar, and high-fiber foods
- For Show Full Answer

For gastrointestinal (GI) symptoms caused by amyloidosis, treatment typically focuses on managing the symptoms rather than directly addressing the amyloid deposits. Depending on the specific GI issues, the following approaches may be used:

- For diarrhea: Avoid high-fat, high-sugar, and high-fiber foods.
- For constipation: Increase fiber intake with fruits, vegetables, and whole grains.
- For nausea or vomiting: Adjust meal timing, such as eating an earlier dinner.

Always consult your doctor for personalized advice.

December 27, 2024

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