Welcome Nancy
I suggest that you have a conversation with your physicians about the risks and benefits of such medications. It is my understanding that users lose more muscle mass than with other weight loss protocols and that people gain back all weight lost if they they ever stop taking the meds.
Everything has risks and benefits. Only you know what's best for you!
My latest mantra is: This isn't the hand I expected, but it's the hand I get to play!.
Wishing you all the best
Joel

Joel, love your mantra! You are absolutely correct on passing it by your doctors first!

Flora, I initially lost 25 pounds with tafamidis but the pounds were unnecessary since I had gained 50 pounds previously. It started to bother me but I leveled off after that poundage loss. most of us could afford to lose unnecessary weight, so it is probably good. Ask yourself, what did you weigh at 20years old? That will tell you whether to bring it up with your Doctor. The A FIB should be brought to your Doctor's attention. Via the Nurse if necessary. Merry Christmas to you also!

Hello, I have cardiac ATTR-CM I have lost over 52 pounds , I think I see it is Muscle mass .
I have A FIB as well so every now and then I go in to A FIB. I HOPE THIS SITE IS AS HELPFUL to you as it has answered a lot of my questions
Merry Christmas to all of you on this site.