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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is There A 501-C-3 (tax Deductible) Entity That Funds Research For Amyloidosis?

A MyAmyloidosisTeam Member asked a question 💭
Carrollton, GA

I was gone over the weekend and found the following medically related charitable requests in my mailbox
• The Leukemia & Lymphoma Society
• American Cancer Society
• Macular Degeneration Research
• MD Anderson Cancer Center
Plus a plethora of Christian appeals.

But to my question: Is there a fund for research for our amyloidosis disease?

Some of us older folks could be sending some of our RMD (required minimum distribution) funds from our IRA account to such organization. And such… read more

November 19
View reactions
A MyAmyloidosisTeam Member

We send part of our RMD to ARC every year.

1 day ago
A MyAmyloidosisTeam Member

There's a website I found a few months ago that talks about clinical trials, research, ECT, they also do donations:
Amyloidosis Research Consortium
is the name of the site, hope this helps

November 20
A MyAmyloidosisTeam Member

I’ve read good things about ARC.

November 20
A MyAmyloidosisTeam Member

Yes, there are organizations that fund research for amyloidosis. Here are some options you might consider:

- Amyloidosis Foundation: This organization supports research and provides education and awareness about amyloidosis
- Amyloidosis Research Consortium (ARC): ARC focuses on accelerating the development of and access Show Full Answer

Yes, there are organizations that fund research for amyloidosis. Here are some options you might consider:

- Amyloidosis Foundation: This organization supports research and provides education and awareness about amyloidosis.
- Amyloidosis Research Consortium (ARC): ARC focuses on accelerating the development of and access to new and innovative treatments for amyloidosis.

These organizations are dedicated to advancing research and finding solutions for amyloidosis, and they may accept tax-deductible donations. It would be beneficial to contact them directly to confirm their 501(c)(3) status and discuss how your contributions can support their research efforts.

November 19
A MyAmyloidosisTeam Member

ARC is wonderful!

November 21

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