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I Have Wtattr Will It Get To My Heart, Its Not There Now

A MyAmyloidosisTeam Member asked a question 💭
Detroit, MI
November 7, 2024
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A MyAmyloidosisTeam Member

I agree with Alain. I likely began experiencing early symptoms of my wild-type amyloidosis at least 20-years ago.

November 9, 2024
A MyAmyloidosisTeam Member

About your question related to Carpal tunnel and ATTR, I can say that personally, I have W-ATTR-cm, I was even heart transplanted. I had carpal tunnel in the two wrists, but it was about 20 to 30 years before having any symptoms of amyloidosis… I was even operated to each of my ten fingers for Trigger fingers. At that time, relationship between amyloidosis and carpal tunnel wasn’t established, So, it seems to me that the progression of amyloidosis is very slow and extends over many years and even decades. But I’m just a patient, not a specialist !

November 8, 2024
A MyAmyloidosisTeam Member

Joseph, it may not buildup in your heart sufficiently enough for it to become a significant health issue. My understanding from you is that you do have some amyloid fibrills excellularly deposited in your heart but only very slightly.

November 7, 2024 (edited)
MyAmyloidosisTeam

Wild-type ATTR (wtATTR) amyloidosis can affect the heart over time. Amyloid deposits can accumulate in the heart, leading to cardiac amyloidosis. This can cause the heart muscle to become stiffer, potentially leading to heart problems such as congestive heart failure, arrhythmias, and other complications. Regular monitoring Show Full Answer

Wild-type ATTR (wtATTR) amyloidosis can affect the heart over time. Amyloid deposits can accumulate in the heart, leading to cardiac amyloidosis. This can cause the heart muscle to become stiffer, potentially leading to heart problems such as congestive heart failure, arrhythmias, and other complications. Regular monitoring and consultations with your healthcare provider are essential to manage and track the progression of the disease.

November 7, 2024

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