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If Its Not In My Heart Yet And I Take Difluisinal And That Stops The Misfolding Will That End Progression Of The Disease
Diflunisal does not completely halt the progression of the disease but it does help slow it down.
Thank you Sheldon.Hope you are doing better This disease is mentally and physically challenge---Joe
Very true of both diflunisal and Vyndamax.
IJoseph: If you have been experiencing any nervous system issues those may continue to progress if they are caused by the your existing disassociated TTR proteins.
Once your TTR breaks down from their tetrameric (4 identical Thyretin proteins bound by hydrogen molecules) form and have accumulated anywhere in your body, the monomeric amyloid fibrils will continue to make adversive changes to whatever tissues they are clumped into.
So, progressive will continue but possibly the impact on you will be less severe since your doctors claim your heart involvement is minimal.
Diflunisal, while not FDA-approved for hereditary ATTR amyloidosis, is sometimes prescribed off-label to help stop amyloid from forming. It works by stabilizing the TTR protein and preventing it from misfolding. However, it's important to discuss with your doctor whether this treatment is suitable for you and how it might Show Full Answer
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