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Amyloid In The GI Tract

A MyAmyloidosisTeam Member asked a question 💭
Nassau county, NY

I have amyloid in my GI tract and after 2 years of treatment I feel like I’ve plateaued. I hope not because it’s still not great. Anyone out there still getting better?

October 26
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A MyAmyloidosisTeam Member

I do two things that seem to be helping me; I started taking a probiotic daily and every morning I start most days with squeezing half a lemon, a Tbsp of Apple Cider Vinegar, a little grated ginger, and a dash of honey mixed in a little water and suck it down through a straw. Ever since I started doing these two things my bloating/burping seem to be much, much less. Way less. The gut just feels a lot better. I still have some diarrhea issues, but that seems to be more manageable too. No plateau yet, I don’t think. Two steps forward, one step back but we just keep on truckin’ the best we can. :-)

October 26
A MyAmyloidosisTeam Member

Yea Andre that’s not my problem. Believe me! My GI tract is definitely clear! 😹

October 30
A MyAmyloidosisTeam Member

Theresa, thank you for the recommendation.

October 27
A MyAmyloidosisTeam Member

Peter I found the Cadillac of diapers! Parentgiving.com I won’t use anything else!

October 26
A MyAmyloidosisTeam Member

Betty, I also have Familial Amyloidosis Polyneuropathy.
I've seen a GI who is on the Amyloidosis Team at Washington University in St. Louis. I saw her Nurse Practitioner about 2 to 3 weeks ago. She recommended that I use Metamucil in the morning. I do this an hour before I eat. Then in the afternoon I take an
Imodium an hour before our evening meal. I understand what you are saying, though, many times I have felt like I just couldn't leave the house. This current regimen works sometimes. But not always. 😟 I hope you find someone who can help you.

October 26

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