Connect with others who understand.

Sign up Log in
Resources
About MyAmyloidosisTeam
Powered By
Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Amyloidosis What Type Of Amyloidosis Do Yo Have And Are You Aking A Diuretics? Thanks, Steve

A MyAmyloidosisTeam Member asked a question šŸ’­

I am Asking for an informal survey of what type of amyloidosis do you have and are you taking a diuretic. We noticed on this site that there are a lot of diuretic users and I tried my wife's diuretic for a week with an improved urinary flow. However, my heart group took me to the woodshed and urged me not to be experimenting with diuretics. Hence I would appreciate any input you might have especially for wild type ATTR combined with diuretic use.

4 days ago
ā€¢
View reactions
A MyAmyloidosisTeam Member

I use Jardiance to aid in water removal as per doctors' orders One pill (10mg) every other day.

4 days ago (edited)
A MyAmyloidosisTeam Member

I have AL. No diuretics. I have hypotension so you have to be very careful. They can lower your bp

4 days ago
A MyAmyloidosisTeam Member

I have Al Amyloidosis, and Iā€™m currently in the hospital right now having fluid removed but usually Iā€™m on Torsemide 100mg which I take twice a day but last chemo medication made me swell again.

13 hours ago
A MyAmyloidosisTeam Member

I have wild type ATTR and my cardiologist has me on Aldactone which is a mild diuretic but it also helps my body retain potassium naturally.

23 hours ago
A MyAmyloidosisTeam Member

Thanks appreciate your wisdom, Steve

3 days ago

Related content

View All

I Have Very Severe Poly Neuropathy What Can I Do? I Have To Use A Walker Nerve Damage Re EMG. Sudden Severe Pain Back Of Legs

A MyAmyloidosisTeam Member asked a question šŸ’­
Fresno, CA

I've Been Subscribed Jardiance Along With My Vyndaquel. Is Anyone Else Using This Drug, And Have You Seen Results?

A MyAmyloidosisTeam Member asked a question šŸ’­
Palm Beach Gardens, FL

Does Amyloidosis Effect Your Memory

A MyAmyloidosisTeam Member asked a question šŸ’­
Milton Keynes, UK
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in