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Does AMY Affect Nerves Resulting In Legs Crippled By Pain. Have Wild Type AMY. Been On Tafamidis Approximately Six Months.

A MyAmyloidosisTeam Member asked a question 💭
Duncan, BC Canada

Pain originates in hip, travels down to left side of shin. Leg can be so numb that walking is not an option.

October 12
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A MyAmyloidosisTeam Member

Amyloidosis can indeed affect the nerves, leading to symptoms such as numbness, pain, or tingling in the legs, which can make walking difficult. This condition is known as peripheral neuropathy. Tafamidis is a treatment option that helps stabilize TTR proteins and can slow the progression of nerve damage. However, it may Show Full Answer

Amyloidosis can indeed affect the nerves, leading to symptoms such as numbness, pain, or tingling in the legs, which can make walking difficult. This condition is known as peripheral neuropathy. Tafamidis is a treatment option that helps stabilize TTR proteins and can slow the progression of nerve damage. However, it may take time to see significant improvements, and some symptoms might persist.

Here are some key points:
- Peripheral Neuropathy: Nerve damage causing numbness, pain, or tingling in the legs.
- Tafamidis: Helps stabilize TTR proteins, potentially slowing nerve damage.
- Symptom Persistence: Some symptoms may continue despite treatment.

It's important to discuss these symptoms with your healthcare provider to explore additional treatment options and manage your condition effectively.

October 12
A MyAmyloidosisTeam Member

Try gabapentin, it helped me

October 13

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I've Been On Tafamidis 3yrs Now. Thought I'd Be A Goner By Now. Must Be Working . Anyone Else Passing The 3yr Mark On Tafamidis?

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