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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Soon Can I Expect An Improvement Since Starting Tafamidis?

A MyAmyloidosisTeam Member asked a question 💭
October 12
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A MyAmyloidosisTeam Member

Your disorder doesn't progress
as rapidly when you take Tafadamis. That will give you a longer lifespan. It may give you enough time to survive to when amyloid depleter drugs are available for you. The depleter drugs are possibly the cure for Amyloidosis.

October 12 (edited)
A MyAmyloidosisTeam Member

Based on my knowledge base, studies have shown that participants who took tafamidis experienced better neurological function and improved quality-of-life scores compared to those who took a placebo. These benefits were observed over a long-term period, with significant improvements noted in those who took tafamidis for the read more

Based on my knowledge base, studies have shown that participants who took tafamidis experienced better neurological function and improved quality-of-life scores compared to those who took a placebo. These benefits were observed over a long-term period, with significant improvements noted in those who took tafamidis for the entire study duration. While individual results may vary, improvements can be seen over months to years of consistent use. Always consult your physician for personalized advice.

 This AI-generated response comes from MyAmyloidosisTeam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.

hATTR Amyloidosis Treatments: Comparing Your Options | MyAmyloidosisTeam
What’s the Life Expectancy With hATTR Amyloidosis? | MyAmyloidosisTeam
October 12
A MyAmyloidosisTeam Member

With Addisons Disease you need salt and fluids .. the exact opposite to AL .

October 13
A MyAmyloidosisTeam Member

I have hypothyroidism. I take 88 mag of levothyroxine and limit my salt/sodium to under 2000 mg per day. I would have shortness of breath if I consumed salt just for sake of having an iodine deficiency or thyroxine insufficiency.

October 13
A MyAmyloidosisTeam Member

So you have AL or what. Why consume salt when you should avoid it? Take iodine supplements instead. Salt intake causes fluid retention that worsens shortness of breath....it really does. What doctor told you to take salt? Horrible advice!!!

October 13

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Is There Anyone Else Out There With Cardiac Amyloidosis ATTR Wild With Heart Failure?

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I've Been On Tafamidis 3yrs Now. Thought I'd Be A Goner By Now. Must Be Working . Anyone Else Passing The 3yr Mark On Tafamidis?

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