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Does Primary Amyloidosis Cause The Sense Of Smell?

A MyAmyloidosisTeam Member asked a question 💭
Odenville, AL
October 8
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A MyAmyloidosisTeam Member

Hi Jim. I am in complete remission from AL Amyloidosis after a HDM-SCT which I had over a year ago. To the best of my knowledge it doesn’t cause loss of smell but Covid does. Do you think you could have it?

October 8
A MyAmyloidosisTeam Member

Primary amyloidosis (AL amyloidosis) can affect the nervous system, which may lead to various symptoms. However, there is no specific mention in my knowledge base that it directly affects the sense of smell. Symptoms related to the nervous system include:

- Pain, numbness, and tingling in the hands, feet, and lower legs
- Show Full Answer

Primary amyloidosis (AL amyloidosis) can affect the nervous system, which may lead to various symptoms. However, there is no specific mention in my knowledge base that it directly affects the sense of smell. Symptoms related to the nervous system include:

- Pain, numbness, and tingling in the hands, feet, and lower legs
- Changes in blood pressure and heart rate
- Erectile dysfunction
- Dizziness after standing too quickly
- Loss of sensitivity to temperature
- Confusion
- Headache
- Loss of sense of taste

If you have concerns about your sense of smell, it is best to consult a healthcare professional for a thorough evaluation.

October 8
A MyAmyloidosisTeam Member

Clair...what is HDM-SCT.? I am new to this and can use all the information I can get before I go to the Dr. This month.

October 11
A MyAmyloidosisTeam Member

Jim, my sense of taste along with sense of smell were affected by either my AL amyloidosis or the chemotherapy treatments. A year or so later I again have good sense of taste and smell.

October 8

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