Connect with others who understand.

Sign up Log in
Quick Links
Q&A Treatments A-Z Help Center Guidelines Crisis Accessibility
Resources
Diagnosis & Information Managing Your Condition Treating Amyloidosis All Resources
About MyAmyloidosisTeam
What is This Site Terms of Use Privacy policy
Powered By
Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Hi There! I'm Wondering If Anyone Has Some Recommendations To Help With Neuropathy Weakness And Pain?

A MyAmyloidosisTeam Member asked a question 💭
British Columbia, Canada

I've been diagnosed this summer with HaTTR. My mom and grandma had it and after several years of symptoms, genetic testing finally confirmed.

September 17
•
Be the first to like/hug
A MyAmyloidosisTeam Member

Gabapentin and maybe some walking if it can be tolerated

September 18
A MyAmyloidosisTeam Member

I've been reading about medications that could help. I'm now dealing with arranging to see a neurologist in the spring 2025 to hopefully see if I can try medications that are available.

September 17
A MyAmyloidosisTeam Member

For managing neuropathy weakness and pain related to amyloidosis, consider the following recommendations based on my knowledge base:

- Medications: Diflunisal and tafamidis can help treat nerve pain by slowing the buildup of amyloid deposits on the nerves and other parts of the body
- Exercise: Regular exercise, such as Show Full Answer

For managing neuropathy weakness and pain related to amyloidosis, consider the following recommendations based on my knowledge base:

- Medications: Diflunisal and tafamidis can help treat nerve pain by slowing the buildup of amyloid deposits on the nerves and other parts of the body.
- Exercise: Regular exercise, such as short walks, can help stimulate appetite, fight fatigue, and alleviate pain.
- Treatment Adherence: Stick to your prescribed therapy for the entire course of treatment, even if you start to feel better, to maximize the benefits.
- Consult Your Doctor: Always discuss any new or worsening symptoms with your healthcare team to adjust your treatment plan as needed.

For more personalized advice, please consult your healthcare provider.

September 17
A MyAmyloidosisTeam Member

I'm also taking Mirtazapine.
Gabapentin did make me constipated for a bit. I deal more with bowel cramps and diarrhea.

September 20
A MyAmyloidosisTeam Member

I'm on gabapentin. It helps to an extent, but still gets bouts of odd pains. Today I've got a new one! There's a spasm down the top of my thigh.
I can tolerate small bouts of walking and do my exercises when feeling good. But on days like today with this new spasm, feel it's a heating pad kind of morning.

September 20

Related content

View All

Symptoms Amyloid Peripheral Neuropathy

A MyAmyloidosisTeam Member asked a question 💭
Ireland, IN
August 31, 2023

Started 6th Wk Of Chemo. Suddenly Feeling Good. More Energy, Head Not Fuzzy, More Stamina. Any Answers?

A MyAmyloidosisTeam Member asked a question 💭
lawtence pa
January 19

Does Anyone Have Numbness In Fingers ?

A MyAmyloidosisTeam Member asked a question 💭
Derby, England
September 29
Wild-Type Amyloidosis — An Overview
Foods To Avoid With Amyloidosis
Hereditary ATTR Amyloidosis Age of Onset: What You Should Know
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in