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Can We Get Updated Resource Material?
Some of the material is from 2021. A lot has advanced since then. Would also like to see new numbers on the overall survival OS rates. We need to know with advanced treatments comes better prognosis.
Thereβs an increasing amount of literature to search through but I always start with Mayo Clinic.
The AI employed here is producing muddled content β mixing AL and TTR in its answers. Not quite hallucinating, but unreliable.
And that was modified in 2022 π Not everything is solved by AI
Once you obtain a basic understanding of your disease, your best bet is academic journals. If you struggle with statistics and such, there are explainers/primers out there that make it understandable.
AI is very cunning ... be wary π
Will The Site Be Putting Up Any New Material In The Resources Section? Some Of The Material Is From 2021β¦ Maybe A Little Outdated π€·π»ββοΈ
Hi Dan From Calgary Asking After Taking 10 Mg Of Dex 2 Hours Before Treatment Increases Your Blood Pressure As Mine Seems To Go Up
I Do Not Know What Symptoms Of Amyloidosis Are: I Have AFBIB Too And Often Feel I Have Long Covid. How Can I Judge What Is Going On?
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