This Question Is For Amy Sufferers In England. Have Any Of You Started Recently On Tafamidis? I Was Wondering If Anyone Had As Now Passed.
Thanks Dorothy for your reply. I have been to NAC Royal Free twice now. I had a phone call and a follow up letter to say I would be getting Tafamidis delivered to me every month, so far I have not received anything. Guess I am too impatient. Hope you are keeping ok. God bless. Xmas
Hi Margaret I'm from Birmingham West mids.ive 8been on meds for 3 wks but i know no one who is on meds .infact the medical professionals don't know about Amy unless you go to Amy hospital .Dx😄
Tafamidis, also known by its brand names Vyndamax and Vyndaqel, is a medication approved by the U.S. Food and Drug Administration (FDA) to treat people with hereditary (hATTR) and wild-type amyloidosis, particularly those with heart symptoms. Studies have shown that tafamidis can improve neurological function, delay disease Show Full Answer
I Am Wondering If I Should Continue To Take Tafamidis As I Am In Stage Iiib Advanced Heart Failure?
Is There Anyone Else Out There With Cardiac Amyloidosis ATTR Wild With Heart Failure?
I've Been On Tafamidis 3yrs Now. Thought I'd Be A Goner By Now. Must Be Working . Anyone Else Passing The 3yr Mark On Tafamidis?