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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Test Are Crucial To Get In Order To Start Treatment For Cardiac Amyloidosis? The Earliest Apts I Could Get Is 10/23 & 11/18

A MyAmyloidosisTeam Member asked a question 💭
Chippewa Falls, WI

I was diagnosed in March & they decided to do nothing except recheck in a year. I’ve searched for new doctors & still have a 2-3 month wait

September 3
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A MyAmyloidosisTeam Member

Sheldon knows , I think he knows more about this awful disease than most doctors!!!! I always feel better after I hear from him.Joe

September 7
A MyAmyloidosisTeam Member

Heart tissue biopsies are not necessary and can miss tissues that contain amyloid deposits. PYP scintegraphy is the Gold Standard. That plus a kappa/lamda light protein check. Genetic testing, and 24 hour electrophoresis urine analysis for light chain proteins determine your type of Amyloidosis.

September 3
A MyAmyloidosisTeam Member

To start treatment for cardiac amyloidosis, several tests are crucial:

1. Heart Tests:
- Echocardiogram: Uses sound waves to create a picture of the heart.
- Electrocardiogram (EKG): Measures the electrical activity of the heart.

2. Imaging Tests
- Cardiac Magnetic Resonance Imaging (MRI): Provides detailed Show Full Answer

To start treatment for cardiac amyloidosis, several tests are crucial:

1. Heart Tests:
- Echocardiogram: Uses sound waves to create a picture of the heart.
- Electrocardiogram (EKG): Measures the electrical activity of the heart.

2. Imaging Tests:
- Cardiac Magnetic Resonance Imaging (MRI): Provides detailed images of the heart.
- Ultrasound: Uses sound waves to visualize the heart.
- Nuclear Imaging Test: Uses a small amount of radioactive material to provide a picture of the heart.

3. Biopsies:
- Heart Tissue Biopsy: A small piece of heart tissue is removed and studied.

4. Laboratory Tests:
- Blood Tests: To measure biomarkers and monitor heart function.

Given your earliest appointments are on October 23rd and November 18th, it is important to discuss these tests with your healthcare provider to ensure timely diagnosis and treatment.

September 3

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