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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Which Heart Rhythm Drugs Are Recommended For AL Cardiac Amyloidosis? Which Ones Should Be Avoided ( Ex Betablockers)?

A MyAmyloidosisTeam Member asked a question 💭
Paisley, ON

How can I acquire a recommended list from an authentic source (which I could provide a cardiologist)?

August 21
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A MyAmyloidosisTeam Member

Yes. My cardiologist is an amyloid specialist.
It's amazing what goes into her decision making.

October 23
A MyAmyloidosisTeam Member

I have AL amyloidosis. Recently got COVID 1st time and it set off autoimmune thyroid issues. PAFIB, htn, sweats, hair loss,
I was started on BB for rate control, changed in levothyroxine, and increased in ca channel blocker.
Things are starting to calm down.
My atrial scarring has been relatively stable from year to year.

October 22
A MyAmyloidosisTeam Member

For cardiac amyloidosis, the usual medications for heart conditions, such as beta-blockers, ACE inhibitors, and calcium channel blockers, can be harmful, especially for people with ATTR amyloidosis. It is crucial to talk to your doctor about which medications will be most helpful and effective for addressing heart damage Show Full Answer

For cardiac amyloidosis, the usual medications for heart conditions, such as beta-blockers, ACE inhibitors, and calcium channel blockers, can be harmful, especially for people with ATTR amyloidosis. It is crucial to talk to your doctor about which medications will be most helpful and effective for addressing heart damage resulting from ATTR amyloidosis. Always consult with your healthcare provider for personalized advice.

August 21
A MyAmyloidosisTeam Member

So, really, it's very individualized - with some trial and error along the way.

October 22

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