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So How Do You Fight The Loneliness That Comes With Amyloidosis?

A MyAmyloidosisTeam Member asked a question 💭
Nassau county, NY

The friends were there when you were healthy and could do things now I find those people scarce. I guess in times of need you find out who you can really depend on.

August 20
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A MyAmyloidosisTeam Member

Theresa, I think all of us here can relate. Even with the best advice, like what our group has offered, sometimes we just can’t shake that feeling of loneliness or grief. Try as we might. We CAN and do get through it though. I love Beverly’s approach; doing something for someone else to combat it. For me, an act of profound loving-kindness to someone else (even if they don’t deserve it ;-) ) will get me through a feeling of despair. I look for opportunities daily of how I can improve life for someone else. Living here in Thailand in a little, rural village, I don’t have to look too far. You have a lot of “friends” here, Theresa. You are not alone.

August 20
A MyAmyloidosisTeam Member

Amyloidosis changes many aspects of one’s life by injecting fear, uncertainty and lots of soul searching. I go the gym daily and have met friends there. Recently join a church. I travel as much as I can.

August 20
A MyAmyloidosisTeam Member

I spend time with few friends and neighbors. I am a member of 3 organizations that sponsor events watch sports and do crossword puzzle.
I also cook most of my food.

August 20
A MyAmyloidosisTeam Member

Thinking of Theresa's above comment on speaking with her cats, I recently saw a sign in the window of a general store reading: "Please do not let the black cat out...no matter what he says"

October 24
A MyAmyloidosisTeam Member

For me the Psalms provide wonderful company. They are written by poets who experienced agonizing loneliness, vulnerability, rejection shame - hope and joy, At night I often listen to David Suchet reading them in the NIV (a modern version). It's freely available on Youtube. -good for falling asleep.

August 21

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