Connect with others who understand.

Sign up Log in
Resources
About MyAmyloidosisTeam
Powered By
Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

So How Do You Fight The Loneliness That Comes With Amyloidosis?

A MyAmyloidosisTeam Member asked a question 💭
Nassau county, NY

The friends were there when you were healthy and could do things now I find those people scarce. I guess in times of need you find out who you can really depend on.

August 20, 2024
View reactions
A MyAmyloidosisTeam Member

Ate way too much last couple hoidays...sometimes I wish my wife was an average cook instead of off the charts outstanding!
Burp

December 27, 2024
A MyAmyloidosisTeam Member

Finally my biscuit left overs and so I decorated them for me ... cream and sprinkles .. hey! Christmas is looking good ... Blood pressure thismorning the best it has been for ages ..129 over 72. better stay awake ...

December 23, 2024
A MyAmyloidosisTeam Member

Theresa, I think all of us here can relate. Even with the best advice, like what our group has offered, sometimes we just can’t shake that feeling of loneliness or grief. Try as we might. We CAN and do get through it though. I love Beverly’s approach; doing something for someone else to combat it. For me, an act of profound loving-kindness to someone else (even if they don’t deserve it ;-) ) will get me through a feeling of despair. I look for opportunities daily of how I can improve life for someone else. Living here in Thailand in a little, rural village, I don’t have to look too far. You have a lot of “friends” here, Theresa. You are not alone.

August 20, 2024
A MyAmyloidosisTeam Member

Thinking of Theresa's above comment on speaking with her cats, I recently saw a sign in the window of a general store reading: "Please do not let the black cat out...no matter what he says"

October 24, 2024
A MyAmyloidosisTeam Member

Amyloidosis changes many aspects of one’s life by injecting fear, uncertainty and lots of soul searching. I go the gym daily and have met friends there. Recently join a church. I travel as much as I can.

August 20, 2024

Related content

View All

I Have Very Severe Poly Neuropathy What Can I Do? I Have To Use A Walker Nerve Damage Re EMG. Sudden Severe Pain Back Of Legs

A MyAmyloidosisTeam Member asked a question 💭
Fresno, CA

Will Acoramidis Replace Tafamidis If Approved In The US? Will We Have A Choice?

A MyAmyloidosisTeam Member asked a question 💭
Sacramento, CA

Anyone See Any Updated Life Expectancy With Tafamidis? Surely Someone Has Updated This Somewhere Since It Has Been In Use For Years Now

A MyAmyloidosisTeam Member asked a question 💭
Sacramento, CA
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in