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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Which Amyloidosis Symptom Surprised You The Most?

A MyAmyloidosisTeam Member asked a question 💭
San Francisco, CA
August 19
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A MyAmyloidosisTeam Member

I went out and purchased a walker by my bed also Sara2. What a difference that made! Not sure whether the confidence was a factor but I do not feel unsteady after the first night on the walker by the bed.

August 27
A MyAmyloidosisTeam Member

Edward I use my walker when I walk long distances. I’m up to anywhere from 4K to 6k steps a day now. In April I could even do 600! The walker definitely helps with balance issues

August 27
A MyAmyloidosisTeam Member

I loss of stamina, I do some house work and get very tired.

September 21
A MyAmyloidosisTeam Member

Me too! That is why I have decided to place a walker at bedside every night - also have small chair at the side of bed I get out of in morning.

August 26
A MyAmyloidosisTeam Member

The weight loss, how much muscle strength you lose, the swelling in my legs and the shortness of breath really took me surprise.

August 19 (edited)

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