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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Love This Website - Are There Any Others You Are Using? I Think The More We Know And Share, The Better!!

A MyAmyloidosisTeam Member asked a question 💭
Sacramento, CA
August 14
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A MyAmyloidosisTeam Member

Many are using it. I wish they would separate AL from ATTR as they really are different in a lot of ways.
Jim4

August 15
A MyAmyloidosisTeam Member

Tafamidis cannot repair the damage already done. it only somewhat slows the progression of the AMYLOIDOSIS process

August 26
A MyAmyloidosisTeam Member

Yes, I was promised transitioning to Amvuttra starting in late October or early November. My Patisiran infusions will be discontinued after my October infusion (s)

August 17
A MyAmyloidosisTeam Member

Correction:

amyloidosissupport.org
Wild-type amyloidosis group.

August 16 (edited)
A MyAmyloidosisTeam Member

Yes, The Amyloidosis Research Consortium

August 15

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