I Am Beginning My Sixth Year Post Wild Type Dx. Are There Many Of You Guys Out There With This Longevity, And If So, How Is Your Energy ?
At the end of my 6th year. Have been on VYNDAMAX/ Tafadamis from the 2nd month after diagnosis. I was in the two Trials
Hi.Jimmy you are doing very well.I do not sleep at night but can in the day.so when I'm worn out doing nothing I rest.Got blessDx.
I was diagnosed early 2019
It's great to hear that you're in your sixth year post-diagnosis with wild-type amyloidosis! According to the knowledge base, people with wild-type amyloidosis generally have a good outlook. One study found that 85 percent of people with the disease survived to their one-year follow-up appointment. Heart transplants have Show Full Answer
Are There Any Doctors Or Nurses Out There That Have A Amyloid Diagnoses?
Stage For Wild Type Amyloidosis. Any Others In That Category?
I Am Wondering If I Should Continue To Take Tafamidis As I Am In Stage Iiib Advanced Heart Failure?