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I Am Beginning My Sixth Year Post Wild Type Dx. Are There Many Of You Guys Out There With This Longevity, And If So, How Is Your Energy ?

A MyAmyloidosisTeam Member asked a question πŸ’­
Matthews, NC
August 13
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A MyAmyloidosisTeam Member

At the end of my 6th year. Have been on VYNDAMAX/ Tafadamis from the 2nd month after diagnosis. I was in the two Trials

August 19
A MyAmyloidosisTeam Member

Hi.Jimmy you are doing very well.I do not sleep at night but can in the day.so when I'm worn out doing nothing I rest.Got blessDx.

August 13
A MyAmyloidosisTeam Member

I was diagnosed early 2019

August 13
A MyAmyloidosisTeam Member

It's great to hear that you're in your sixth year post-diagnosis with wild-type amyloidosis! According to the knowledge base, people with wild-type amyloidosis generally have a good outlook. One study found that 85 percent of people with the disease survived to their one-year follow-up appointment. Heart transplants have Show Full Answer

It's great to hear that you're in your sixth year post-diagnosis with wild-type amyloidosis! According to the knowledge base, people with wild-type amyloidosis generally have a good outlook. One study found that 85 percent of people with the disease survived to their one-year follow-up appointment. Heart transplants have also shown to help people live longer, with another study indicating that every participant was alive three years after their heart transplant.

Energy levels can vary widely among individuals. If you're experiencing fatigue, it might be helpful to discuss this with your healthcare provider to explore potential causes and management strategies.

August 13

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