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Were Any Of You Guys On The 3 Year Clinical With The Drug Called: Helios B? Generic Name Is Vutrisiran. There Were Only 655 Candidates.

A MyAmyloidosisTeam Member asked a question 💭
Matthews, NC
August 10
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A MyAmyloidosisTeam Member

January 2024 was when my Cardiologist discovered that I had the Wild Type Amylodosis.
Tony5

August 10
A MyAmyloidosisTeam Member

My husband has Wild Type - not on the trial either.

August 13
A MyAmyloidosisTeam Member

I have wild type. Not on any trial

August 10
A MyAmyloidosisTeam Member

The Helios-B study is a clinical trial designed to evaluate the long-term safety and efficacy of vutrisiran for patients with hereditary transthyretin-mediated (hATTR) amyloidosis. This study is set to last seven years and will provide more information on the long-term safety and efficacy of the drug. The trial compares Show Full Answer

The Helios-B study is a clinical trial designed to evaluate the long-term safety and efficacy of vutrisiran for patients with hereditary transthyretin-mediated (hATTR) amyloidosis. This study is set to last seven years and will provide more information on the long-term safety and efficacy of the drug. The trial compares vutrisiran to a placebo (saline injection) and aims to gather comprehensive data over this period.

August 10

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Will Acoramidis Replace Tafamidis If Approved In The US? Will We Have A Choice?

A MyAmyloidosisTeam Member asked a question 💭
Sacramento, CA
April 8

Anyone See Any Updated Life Expectancy With Tafamidis? Surely Someone Has Updated This Somewhere Since It Has Been In Use For Years Now

A MyAmyloidosisTeam Member asked a question 💭
Sacramento, CA
May 13

I've Been On Tafamidis 3yrs Now. Thought I'd Be A Goner By Now. Must Be Working . Anyone Else Passing The 3yr Mark On Tafamidis?

A MyAmyloidosisTeam Member asked a question 💭
Columbus, OH
January 28, 2023
hATTR Amyloidosis Treatments: Comparing Your Options
Hereditary ATTR Amyloidosis Age of Onset: What You Should Know
Overview of Amyloidosis
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