I think we’re in the Dark Ages regarding this disease and that it’s much more prevalent that currently acknowledged.

Biggest misconception… we’re not dying tomorrow! Hopefully long life ahead for all of us!

I agree with Stanford that life expectancy is better in length and quality than many believed. When I was first diagnosed the things I read and my regular cardiologist gave me 2 - 3 years. After meeting with my amyloidosis specialist cardiologist, he said that it is likely that some other old age related condition could cause my demise. He said I have at least 10 - 12 more good years. Dan
PS I love the hats you and your wife are wearing. I also love your positive attitude.

A physical therapist just told me that she studied at a big university and they saw very few cases of amyloidosis, now so many veterans are being diagnosed with it. It seems to be a poorly recognized disease.

When I was first diagnosed with AL AMY I was led to believe I had 2 or 3 years to live. In early '23 doctors started convincing my to have cystectomy and live with bag. Stick to my belly.
Sooo...I suspect that life expectancy is better in length and quality than many believed???
I AM getting wesker and more body pains amd problems but I am also getting older so hard to say which is worse:
Gettin old
Or
Gettin Amy

I believe these help:
Relationship with Christ
Relationship with spouse
Healthy eating
Healthy drinking
Regular Exercise
Positive attitude
Positive amd supporting friends and family