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My Eyes Have Gotten So Much Worse To The Extent That They Are Worse Than Any Other Of The Symptoms.

A MyAmyloidosisTeam Member asked a question 💭
Saint Louis, MO

Worse is the double and triple vision. I also get blurry eyes, and runny eyes. I frequently have to squint to see anything. Anyone had similar experiences? Any suggestions for help? Thanks, Bev H.

May 15, 2024
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A MyAmyloidosisTeam Member

If your taking Amvutra or ompatro, you should be taking Vitamin A supplements because they deplete your vitamin A levels and it affects your vision.All the to you!

May 15, 2024
A MyAmyloidosisTeam Member

5% of TTR is produced in the eyes. 80% in your liver, 15% in your brain's Choroid Plexus.

May 16, 2024
A MyAmyloidosisTeam Member

I wish you well, Beverly. You are in my prayers today. Keep trucking as the old saying goes.

May 16, 2024
A MyAmyloidosisTeam Member

I just read an article sent from "My Amyloidosis Team" about how it can affect your vision.
Last week I saw my opthamologist and he recommended that I have Cataract surgery. My neurologist said there is no reason why I shouldn't. But, I will be have several questions for the opthamologist doing the surgery.

May 15, 2024
A MyAmyloidosisTeam Member

I too am experiencing vision problems. I have ATTRwt and am taking Vyndamax. Worsening double vision, worsening light sensitivity, hard to read books, eyes seem dryer, eyeglass Rx changes every 6-8 months. I have an appointment with a neuro-ophthalmologist next month. Hoping that they know about AATR!

May 16, 2024 (edited)

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