Will I Always Feel This Tiredness With My WATTR-cm? I Never Feel Rested!
I urge you to find a cardiologist who specializes in ATTR-wt. I was told to Keep Exercising (that was actually repeated three times in my first appointment) but your situation might be different. Add my exercise had decreased due to a pacemaker implantation my fatigue had increased. Might be a coincidence or ???
Welcome to our journey.
Joel
Wheeu! Long dog walk, but now doing laundry for the week. Have you been Cardio-Versioned? If not you should have been if you have A-Fib.. Also I do not know if you are on Vyndamax or other therapy. Before my C/V I was always exhausted and slept poorly, after I was my normal easy self and glad of it.
I Am Wondering If I Should Continue To Take Tafamidis As I Am In Stage Iiib Advanced Heart Failure?
Is There Anyone Else Out There With Cardiac Amyloidosis ATTR Wild With Heart Failure?
Is Anyone Using Partisiran, Inotersen Or Vutrisiran With Vyndamax In Treatment For CATTR-CM. Same As HATTR. Success? Cost?