Will I Always Feel This Tiredness With My WATTR-cm? I Never Feel Rested!
I urge you to find a cardiologist who specializes in ATTR-wt. I was told to Keep Exercising (that was actually repeated three times in my first appointment) but your situation might be different. Add my exercise had decreased due to a pacemaker implantation my fatigue had increased. Might be a coincidence or ???
Welcome to our journey.
Joel
Wheeu! Long dog walk, but now doing laundry for the week. Have you been Cardio-Versioned? If not you should have been if you have A-Fib.. Also I do not know if you are on Vyndamax or other therapy. Before my C/V I was always exhausted and slept poorly, after I was my normal easy self and glad of it.
Is There Anyone Else Out There With Cardiac Amyloidosis ATTR Wild With Heart Failure?
I Am Wondering If I Should Continue To Take Tafamidis As I Am In Stage Iiib Advanced Heart Failure?
Is Anyone Using Partisiran, Inotersen Or Vutrisiran With Vyndamax In Treatment For CATTR-CM. Same As HATTR. Success? Cost?