Has Anyone (other Than Me) Been Diagnosed With AEFEMP1 Amyloidosis And, If So, How Are You Being Followed?
Mine was found in a hip joint. I have elevated kappa serum light chain protein, normal lambda,and a very slightly elevated k/l ratio.
I Have Very Severe Poly Neuropathy What Can I Do? I Have To Use A Walker Nerve Damage Re EMG. Sudden Severe Pain Back Of Legs
Is There Anyone Else Out There With Cardiac Amyloidosis ATTR Wild With Heart Failure?
I Am Wondering If I Should Continue To Take Tafamidis As I Am In Stage Iiib Advanced Heart Failure?