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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone (other Than Me) Been Diagnosed With AEFEMP1 Amyloidosis And, If So, How Are You Being Followed?

A MyAmyloidosisTeam Member asked a question 💭
Englewood Cliffs, NJ

Mine was found in a hip joint. I have elevated kappa serum light chain protein, normal lambda,and a very slightly elevated k/l ratio.

February 28
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I Have Very Severe Poly Neuropathy What Can I Do? I Have To Use A Walker Nerve Damage Re EMG. Sudden Severe Pain Back Of Legs

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Is There Anyone Else Out There With Cardiac Amyloidosis ATTR Wild With Heart Failure?

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I Am Wondering If I Should Continue To Take Tafamidis As I Am In Stage Iiib Advanced Heart Failure?

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