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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Hi Everyone. Can You Folks Tell Me How You Handle Inappetence From AL Amyloidosis? My Dad Is Losing Weight And I'm Wondering How I Can Help.

A MyAmyloidosisTeam Member asked a question 💭
Pompano Beach, FL
February 22
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A MyAmyloidosisTeam Member

First… can he eat? If he can, for me, anything I could eat. The amyloid makes all my food taste like crap but I just power through. I had a nutritionist tell me just put butter, sour cream, peanut butter on your food. Anything fattening. I lost over 50 lbs but I’ve gained 17 back. So I’m still skinny but not underweight. Of course if there is kidney issues you have to be careful with some foods. You should definitely consult a nutritionist.

February 23

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I Have Very Severe Poly Neuropathy What Can I Do? I Have To Use A Walker Nerve Damage Re EMG. Sudden Severe Pain Back Of Legs

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