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Has Anyone Got Approved For SSD For Cardiac Amyloids Or Neuropathy

A MyAmyloidosisTeam Member asked a question 💭
Gakona, AK
February 15
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A MyAmyloidosisTeam Member

If you do apply make sure you talk about how the Amyloidosis CM with Neuropathy has debilitated you. By the way you have the same as me. I have cardiac and neuropathy involvement with my hereditary Amyloidosis.

February 18
A MyAmyloidosisTeam Member

I think the normal time for getting SSI is about 2 years. I didn’t have a lawyer but I had terrible back problems when I applied for disability SSI. After I reached 65 it automatically converted to regular SSI. I didn’t find out about Amyloidosis until I turned 69. But like I said I didn’t have to get a lawyer. I just took my chances and completed the application myself. I had lots of documentation from doctors and hospitals. I’d had 3 surgeries and my lumbar spine was completely fused. I also had swelling in my legs ankles and feet that was so bad I could hardly walk on them. I was in really bad shape. Before my 3rd surgery the doctor told me I was looking at the likelihood of living in a wheelchair if I didn’t get the operation. My spine was 75% full of stenosis. I hope this helps. Let me know if I can help further. Bev

February 18
A MyAmyloidosisTeam Member

Yes but it’s a very long process. You should have a lawyer handle it for you. I have AL and it took me 2 years to finally get it.

February 15
A MyAmyloidosisTeam Member

Thank you will do I’m in an electric wheelchair just started the process hope u doing well

February 18

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