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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Diagnose 1 Year With Cardiac Amyloidosis With No Treatnent At All... Expected Time Alive?

A MyAmyloidosisTeam Member asked a question šŸ’­
Jacksonville, FL
February 14
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A MyAmyloidosisTeam Member

I drive 4 hrs to Mayo in Jacksonville seeing Cardiologist and Neurologist they are working on it for me Iā€™m right with you a social worker should help her

February 15
A MyAmyloidosisTeam Member

Your located right by the Mayo Clinic. There has to be a social worker there that can help you navigate this. You really need to get treatment to get the best prognosis.

February 15
A MyAmyloidosisTeam Member

We were told life expectancy without treatment would be 4-5 years, not an expert but biopsy not always needed to diagnose cardiac amyloidosis

February 14
A MyAmyloidosisTeam Member

Call you cardiologist and get him to help you with the application for meds.

April 7
A MyAmyloidosisTeam Member

Have you or your doctor applied for assistance from Pfizer?

February 18

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