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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Lessons From Your Amyloidosis Experience Are You Applying In 2024?

A MyAmyloidosisTeam Member asked a question 💭
San Francisco, CA
January 22
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A MyAmyloidosisTeam Member

Acceptance. Ownership. Positive approach.
We don’t choose what we get. We don’t have to like it. But we have to embrace any maladies we have in order to be okay with ourselves… love ourselves as”walking examples” of any disease. It’s never about anything other than how we REACT to bad situations.
And way too much energy wasted with negative reaction.
I have 5 major serious conditions. Started 45 years ago and have been handling them as the piled onto my life. My theory above is my way of survival….and I plan that every day is going to be a good one. Which is why I still am so active despite all that tries to take me down.
My forces are stronger than their forces!

Hope this this helps you cope.

Bunny

January 22
A MyAmyloidosisTeam Member

I stay positive, happy and live my life with a smile. I trust my Doctors and the process. This disease does not define me as a person, never has and never will. I have just opened my own art gallery in Porto a dream of mine I would probably never have done that if I hadn't shifted my mind 'up a gear' when I found out I had amyloidosis.

January 22
A MyAmyloidosisTeam Member

I have learned to live for today. Have the best time at everything I am doing and not to give up. Answers and support is out there, keep being open and optimistic with all that I can do today. I can see now how much better I feel and even the family and friends around me don't see me as having a terrible illness even when I am not feeling well. Stay Hopeful!

January 23
A MyAmyloidosisTeam Member

Exercise mind, body, soul, and spirit.

January 23
A MyAmyloidosisTeam Member

My strategies for 2024 are to 'keep on keeping on'. That is, my 2023 strategies worked well for me so I plan on staying with those strategies. That is: exercise as close to your maximum as possible, eat healthy, keep socially active, exercise your brain as much as possible, follow doctors' orders, and most importantly, stay positive. I am where I am, so I accept my limitations and work toward improvements.

January 22

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