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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone Here Have Neg Bone Marrow For Amyloidois And Neg Fat Aspirate? But Docs Push For Other Organ Involvement? MGUS And Bence Jones.

A MyAmyloidosisTeam Member asked a question 💭
Yuba City, CA
October 22, 2023
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A MyAmyloidosisTeam Member

Yes, I know. But their concern is, because they keep growing, it can go into a vital organ.

October 26, 2023
A MyAmyloidosisTeam Member

Wow Mary and you were diagnosed in 2011! If you don’t mind me asking what organ involvement do you have?

October 23, 2023
A MyAmyloidosisTeam Member

I haven’t but I would do it anyway just to rule it out. Amyloidosis could be anywhere! How is your light chain bloodwork? If that’s abnormal I would keep looking.

October 23, 2023
A MyAmyloidosisTeam Member

Olivia looks like you need to keep looking.

Mary it seems to be that the overall survival is better for the people that have it in their soft tissue and joints rather than a major organ like heart or kidneys.

October 24, 2023
A MyAmyloidosisTeam Member

Theresa, my kappa/lamba ratio was very high at 12.5.

October 24, 2023

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