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Tafamidis Treatment, Good, Bad, Side Effects?

A MyAmyloidosisTeam Member asked a question 💭
Palm Desert, CA

Anyone on tafamidis, either Vyndaqel or Vyndamax? How is the treatment going, any improvement, side effects, ect.
How to pay for it?
Need help, any info would be much appreciated.
Thank you

October 18, 2023
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A MyAmyloidosisTeam Member

Thanks Irv but I met Dave's wife this past weekend in Chicago and she is young and will qualify for Pfizers copay card as long as she meets the criteria of not being on any type of government insurance such as Tricare. The cost to them will be zero dollars

November 1, 2023
A MyAmyloidosisTeam Member

Healthwell Foundation cardiomyopathy grant will help cover some of the cost of you meet their qualifications. Pays up to $10,000 annually. https://www.healthwellfoundation.org/fund/cardi... The grant also covers several other cardiac drugs that you might take. The list is on the website.

October 30, 2023
A MyAmyloidosisTeam Member

Look for a grant that will pay for medication. Your Oncologist would be a good place to ask. Mine has a person who does that and certainly helped us.

October 19, 2023
A MyAmyloidosisTeam Member

Paula - under the Biden plan Vyndamax goes from $19000 to under 5000. I have a great medical broker I will be glad to share name with anyone just private text me

October 31, 2023
A MyAmyloidosisTeam Member

I'm on Vyndamax and have been for 6 months. I'm lucky I guess because it doesn't cause any side effects. As far as I can see I have not gotten any worse, but then I was diagnosed with Wild Type early by accident when they thought I had a heart attack but it was not. They discovered my heart LV wall was 16.mm. I live in Canada and the terrific price is covered my Blue Cross and Pfizer.

October 20, 2023

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