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What Is The Most Common Way To Die From End Stage Amioloydosis?
I am in final stage of amyloidosis...detected via MRI over a year ago when I was being scanned for Cardiac Heart failure . I am in hospice care with a consistent daily pulse rate of 30 bpm. It was over 90 bpm mid August and suddenly dropped to a 36-38 heart rate within 2 days. It descended to a consistent 32 pulse rate (bpm) in mid September. Since October 1st the heart rate is mostly 30-31 and a couple 29s have been recorded! I have increasing heart pains but I can walk short distances in my… read more
Keep baffling them sir, only God knows the answer.
I’m so sorry that you are having to go through this Bob. Yes, 30 BPM is very low!! I also would like to learn the end stage symptoms although I’m sure it is different for everyone, depending on where it is in your body. My wish is to go peacefully and pain free. It sounds as though you are comfortable, sleeping a lot and have your daughters to visit with you. God bless and peace be with you. 💕
I have frequently been considering this question in the past several months. Since I saw your post I have been frequently thinking about you, Bob.
My hope and prayer is that you are filled with strength and peace and love in this season of your life.
You should look on Facebook as there is a group with the same diagnosis including my sister. You might find more answers to your question(s) in that active group.
I’m sorry I can’t help you. I wish I could. Bless you
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