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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Been Told They Don’t Have Cardiac Amyloidosis When They Were Told They Did?

A MyAmyloidosisTeam Member asked a question 💭
New York, NY

My HCM Dr tells me he doesn’t think I have amyloidosis. I take Tafadamis. Should I stop it? Don’t know what to do!

September 16, 2023
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A MyAmyloidosisTeam Member

Second opinion! How were first diagnosed?

September 17, 2023
A MyAmyloidosisTeam Member

What??? Wth. I mean it’s great if you don’t have it but now what…

September 16, 2023
A MyAmyloidosisTeam Member

No idea who could be this member?

September 16, 2023

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Does Anyone Else Have Balance Issues?

A MyAmyloidosisTeam Member asked a question 💭
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I Am Wondering If I Should Continue To Take Tafamidis As I Am In Stage Iiib Advanced Heart Failure?

A MyAmyloidosisTeam Member asked a question 💭
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