Anyone Experiencing Weight Loss?
I have HATTR Amyloid resulting in my having Cardiac Amyloidosis and Peripheral Neuropathy. I am taking Vyndamax and soon to start Amvuttra (spelling) could these be the cause of my weight loss.
Zofran really helps with the nausea and it’s also constipating so that helps me with the diarrhea
Thank you Theresa yes I believe it is in my GI tract have had extreme bouts of diarrhea and constant nausea. I am not eating well - skip meals. I do use meal replacements at times still not gaining weight. I will ask my doctor about malabsorption she maybe to help. Thank you for the information.
How is your eating? Do you also have it in your GI tract? It might be a malabsorption problem. I finally stopped losing. I have it in my GI tract and because of that chronic diarrhea. I went from 155 down to 99. I settled in between 105 & 110 depending how bad the diarrhea is that week.
I agree, Zophran is the ticket for nausea. If you can keep it down they work within 5 min. Fortunately they are tiny yellow oval pills.
My wt goes up and down like a thermometer ... I went from 194 to currently 154 and I am 5'6 I don't have to exercise..I have no appetite at all but like I said I have reported this and my friends and family noticed but the doctors didn't
My Name Is Takashi. I Have Been Losing Weight Recently.
Does Anyone Regain The Large Weight Loss Brought On By The ATTR Disease?
Does The Weight Loss From ATTR Wt Level Off At Some Point?