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What Are Symptoms Of Systemic AL Amyloidosis?

A MyAmyloidosisTeam Member asked a question 💭
Las Cruces, NM

I was fiagnosed with AL amyloidosis confined to my bladder in 2018. Recently my doctor advised it be removed which I plan to have done in a few months.
How do I know it is not in other places in my body. GP and pee doc have no clue.

July 17, 2023
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A MyAmyloidosisTeam Member

Get yourself a good team of doctors. A cardiologist, hematologist etc. Don’t just depend on your GP. I had all kinds of weird symptoms. Low bp & heart rate, GI issues, neuropathy. Everyone is different.

July 18, 2023 (edited)
A MyAmyloidosisTeam Member

Symptoms of systemic AL amyloidosis can vary widely and affect multiple parts of the body. Here are some key symptoms:

- Kidneys: Swelling in the feet and ankles, decreased urine output, frothy or foamy urine, blood in the urine, tiredness, and loss of appetite
- Heart: Shortness of breath, fatigue, irregular heartbeat, Show Full Answer

Symptoms of systemic AL amyloidosis can vary widely and affect multiple parts of the body. Here are some key symptoms:

- Kidneys: Swelling in the feet and ankles, decreased urine output, frothy or foamy urine, blood in the urine, tiredness, and loss of appetite.
- Heart: Shortness of breath, fatigue, irregular heartbeat, heart palpitations, lightheadedness, and dizziness.
- Gastrointestinal System: Weight loss, abdominal pain, blood in the stool, constipation, diarrhea, nausea, vomiting, and difficulty swallowing.
- Nervous System: Pain, numbness, tingling in hands and feet, changes in blood pressure, erectile dysfunction, dizziness, and loss of sense of taste.
- General Symptoms: Fatigue, muscle weakness, hoarseness, stiff joints, trouble sleeping, and abnormal bleeding.

Early diagnosis and treatment are crucial to prevent progression to organ failure and death.

July 11
A MyAmyloidosisTeam Member

Are you in any way familiar with nattokinase and its perported potential in some forms of amyloidosis?

August 20, 2023

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