Thanks for these answers. Went to the cardiologist yesterday. We have been turned down for the vyndamax by the insurance company but apparently that is normal so they will keep working on it. She also indicated that some promising drugs are in the pipeline so that was good news. Have to see the electrocardiologist after the MRI. They may make changes to the pacemaker to help his ef. So we are making a small amount of progress. Feeling ok and just trying to take that advice and live a little slower!

Sorry to hear about that. You can try a couple of things. Elevate the bed, this should help. Also have him go to a specialist to see if he needs a cpap.

Will be 82 in November and was diagnosed this past January. Can’t sleep in bed have been in my recliner at night for several years. Also have neuropathy and type two diabetes. Going day to day.

Agree with JackGrefe. Elevate versus laying down and try to get a sleep test done to qualify for cpap. My husband is two months in with Vyndamax. The drug slows progression (or that's what we were told), so he's not feeling any different. Until there is something available to remove/deplete the amyloid the symptoms related to the heart won't 'get better'. Watched via Zoom the Amyloidosis Forum yesterday (there should be a recording to share, hopefully, if you missed it.) One patient shared that it's important to "not stop living with this diagnosis but to live more slowly...". Wishing you a good day and hoping for forward movement with new discoveries and a cure.