Has Anyone With ATTR-C Had Any Bladder Issues?
Blood in urine? urge incontinence? slow flow? Have drs related it to ATTR, neuro involvement or just the aging process? What has been the treatment and does it resolve?
Why? I have gotten to the point where when a doc suggests a test or drug or procedure, we ask how if will make a difference in his life. If they can't give us a decent/positive rationale for whatever they are proposing, we don't do it.
I also have COMMON VARIABLE IMMUNE DEFICIENCY DISEASE ALONG WITH AMY! All major body components can be affected by my 2 diseases. Yes to have to watch as UTI can be chronic, same with kidney issues. Suggest you continue to fight for preventative and PRECISION meds (if possible).
It’s a constant battle to get my medical team to collaborate with each. I’m my own Case Manager and it just gets harder.
I still have to deal with it.
❤️❤️❤️ they’re always there to keep you going
My new pup insists on me takig him out even when my body objects. Getting small progress in prepping veggie garden plot for next year.
I don't get done in a couple hors what used to get done in 15 minutes...but keeps circulation pumping...and heck, I aint 28 anymore anyway...
Does A Negative Attr Gene Test Mean I Have Wild Type?
Is Wild Type ATTR Affect Life Expectancy More So Than Hereditary ATTR-CM?
Hello….Those Of You With Hattr. Did It Tend To Run In Your Families? And Was The Age Of Onset Younger Than 75?