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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Else Experienced The Loss Of Walking

A MyAmyloidosisTeam Member asked a question šŸ’­
Los Angeles, CA, CA

My balance has gotten worse even with the use of my walker also my carpal tunnel has gotten worse any suggestions

April 5, 2023
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A MyAmyloidosisTeam Member

Yup braces help but don't wear em too long at a time.
Need to gently stretch hands and fingers as well as reaching out with arms. Be sure to flattn out hands often...like pressing together or fairly firmly on tables.
Good luck
God bless.

October 28, 2023
A MyAmyloidosisTeam Member

I slowly started to lose balance 9 years ago. Unsteady gait, then used a walking stick to help. Then drop foot issues. After 4 neurologists, 2 more at Mayo, and 3 chiropractors over the years it was determined that I had a compressed spinal cord. Two years ago had laminectomy on 3 vertebrae to clean out tissue and allow spinal cord space. Balance has been worse, using a walker always. After 6 months of review cardiologists determined that ATTR was present (April 2023). Taking tafamadis but looking at Stem cell work for the neuropathy. The great unknowns continue.

September 30, 2023
A MyAmyloidosisTeam Member

Will see about the balance exercise class, thanks

June 5, 2023
A MyAmyloidosisTeam Member

How about a balance exercise class.

April 8, 2023
A MyAmyloidosisTeam Member

Iā€™m so tired of these doctors. Neurologists, vascular surgeons, cardiologists. Iā€™m just tired of trying.

September 30, 2023

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