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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Taken Tafamidis And Gotten Better?

A MyAmyloidosisTeam Member asked a question 💭
Saint Louis, MO
March 11, 2023
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A MyAmyloidosisTeam Member

I have been on VYNDAMAX for 3 years now and have not felt further degenerative health other than attributable to age. I believe it is having a positive effect in that respect. I stay active golfing 3-4 days a week and exercising 3 days a week. I believe it is doing its “stabilizing” job.

June 19, 2023
A MyAmyloidosisTeam Member

I have been on Vyndamax for over a year. Vyndamax will not cure amyloidisis but it slows the progression giving time for other drugs in testing to be approved. Some of these drugs are in trial stage that if you think you are reaching the end, you might try to volunteer
Best of luck. Keep your head up. There seem to be periods that feel like the end and then you bounce back. Positive Mental attitude is really important. Check with your doctor re: other conditions but Vyndamax simply keeps the protein from attaching itself to your organs.
Ralph Lenoci

March 16, 2023
A MyAmyloidosisTeam Member

k

April 9
A MyAmyloidosisTeam Member

Keep it up! Great job!

April 7
A MyAmyloidosisTeam Member

butch2
That sounds great.
The drug msut be helping.
Jim4

June 22, 2023

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