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Fellow AL Amyloidosis Sufferers, Has Anyone Experienced One Swollen And Painful Ankle And Discovered The Cause And Solution? Thanks, Norm2

A MyAmyloidosisTeam Member asked a question 💭
England, AR
October 22, 2022
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A MyAmyloidosisTeam Member

That can be just about anything. For me, age 71, I am managed well with blood pressure meds, occasional diuretic.
Since I have cardiac AMY, I know as the disease progresses, I’ll” swell more. In order to keep my left ankle/lower leg from swelling…i choice the non-med route: I walk 1/2 hour at a minimum of 5 days a week…avoid all salt…eat very little processed food…read my food labels and if the sodium is over 300, I pass on eating that item….I drink a minimum of 8 oz of water before bedtime…if I awake…I have more water by my bedside…

October 23, 2022
A MyAmyloidosisTeam Member

I was on fludrocortisone and that was the culprit of my swollen legs and feet. Switched meds and 100% better. Still have some slight swelling if I stand or sit too long.

February 15, 2023
A MyAmyloidosisTeam Member

Just coping as I Have not seen the specialist yet..

October 25, 2022
A MyAmyloidosisTeam Member

any solution to the problem? Or do you just have to cope with it?

October 24, 2022
A MyAmyloidosisTeam Member

I have really swollen feet, ankles and legs up to my knees. If I get the support hose on first thing it helps them. I drink water like mad - to no avail.. Oh and they ache

October 23, 2022

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