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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What's The "end Game" Look Like?

A MyAmyloidosisTeam Member asked a question 💭
Ancram, NY
October 2, 2022
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A MyAmyloidosisTeam Member

Thanks--encouraging

October 9, 2022
A MyAmyloidosisTeam Member

Alnylam has a MRNAI infusion drug called Onpattro that stops production of 80% of the TTR made in your liver. Vyndamax and a few other drugs, notably Acoramidis, stabilizes a good bit of the Transthyretin being produced so that it does not misfold into monomers and clump in your heart, kidneys, joints, etc. No cure per se, but ways to stop the progression of the Amyloidosis do exist.

October 9, 2022
A MyAmyloidosisTeam Member

Great question. I have a lot of the same questions I see here.

December 10, 2022
A MyAmyloidosisTeam Member

I have no idea. I can tell you what the "Present game" looks like and that's a blessing. I don't often come on this sight because of these types of outlooks. We are all fighters and if your not willing to e courage yourself, how can you help others. I'm not trying to be rude but not here to ruin my day discussing the end game. Stay faithful and blessed. Read Hebrews 11:1 and pray on it.

🙏

October 22, 2022
A MyAmyloidosisTeam Member

Fred, you are most welcome. Keep the Faith!

October 10, 2022

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