My insurance has denied coverage for treatment with Vydamax since I’m currently taking Onpattto. They state the two should not be combined. Has anyone found this ?
Michael, my doctor told me that Vydamax was the only thing he would prescribe to me.
Just curious ... Is Amvuttra (Vutrisiran) the same as OnPattro (Patisiran) or in the same category?
It is the same as onpattron. I will tell you my opinion on this drug . My dad has received two injections of this drug and he hasn't been the same man . He has had an adverse reaction extreme pain in… read more
After being on Onpattro for 6 months (with great improvement) I was switched to Amvuttra. I received the first shot in December 2022 and scheduled for next one on March 22, 2023. I have noticed a huge decline similar to my pre Onpattro
days. I think I should switch back to Onpattro and will discuss with my doctor on Thursday....6 days before next shot. Can I get feedback? Anyone relate?
will tell you my opinion on this drug . My dad has received two injections of this drug and he hasn't been the same man . He has had an adverse reaction extreme pain in joints arm , knee , foot . He… read more
Hi. I had a numbness feeling in my left arm and hand for a few weeks about 6 months ago. It disappeared so I didn’t think too much about it. It’s back again now for a few weeks and I sometime get slights pins and needles in the tips of my fingers. Could this be a symptom of neuropathy? Could it be there for a few weeks, disappear and then come back again? I have hATTR cardiac Amyloidosis and am in Vyndaquel for 8 months now. Thank you.
Is Onpattro treatment for wild type Amyloidosis?
Paula, that's the way it works for me. Since I've been back on straight Medicare and CHAMP/VA (Tricare) everything has been working fine with OnPattro.
After 3 years being diagnosed with ATTR-CM I am on the same basic treatment with few symptoms. BUT, my Cardiologist has no experience with Amylodosis and I cannot help thinking we should at least compare to the original diagnosis and maybe need to concentrate on gene silencers.
What are usual side effects of Onpattro infusions and preinfusion drugs?
I am starting Patisiran (Onpattro) infusions in May.
I started taking over the counter Turmeric with black pepper extract. Seems to help
Mary Ann. I pray things improve for your husband. I keep thinking we all have different DNA and genes so these drugs may affect us differently. I am going to quiz the Dr.s in my Patirisan infusion on… read more
What are the most expensive meds/treatments for Amyloidosis?
Excellent. Glad that you were able to get some assistance.