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529 questions

Folks, How Are Your Side Effects After The Chemo? I Got Severe Diarrhea, And Nothing Can Stop It.

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posted 2 days ago

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What about the "Brat" diet during the worst.I used it with my Girls growing up. Bananas,rice,applesauce and toast. No butter,no jelly,no sugar added.Plain.It worked !

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Does Anyone With Amyloidosis Have A Liquid Intake Restriction? I Think I Need It I Gather Often Liquid In My Chest And Need Fluid Restrict

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posted 3 days ago

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They got me taking 100mg Torsemide to keep the fluid from building up especially in my legs and chest.

posted 1 day ago

I Am In AL Remission For A Year Now But My Blurred Vision Is A Problem,Any Others With Impaired Vision?

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posted 4 days ago

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I Have Cardiac Attr An I Am On Vydamax. Lost Lots Of Muscle Mass Used To Be College Football Player. Is This A Symptom Any Advice?

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posted 5 days ago

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Friends, Did Anyone Have Together With The Amyloidosis A Chest Cavity Pleural Infusion? I Have It Despite The Increased Dose Of Furosemide.

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posted 5 days ago

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Thanks for the info! God Bless!

posted 5 days ago

What Type Of Doctor Should I Go To? I Was Just Diagnosed A Month Ago. My Family Dr Did Not Tell Me What Type Of Doctor

A MyAmyloidosisTeam Member asked a question 💭

posted 6 days ago

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Hematologist & cardiologist

posted 6 days ago

What's The New Medication For Amyloidosis, I'm Currently On Vyndamax. Any Information Appreciated, Thanks! Keep The Faith ☮️🙏

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posted 6 days ago

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Thanks Tee for your reply much appreciated

posted 6 days ago

My Husband Hasboth Al Amyloidosis & Multiple Myeloma. He Gets Shots & Cyclophosphamide Once A Week. He’s Starting To Loose His Memory.

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posted 6 days ago

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Brain Fog, chemo brain or whatever you choose to call it is not unusual when taking chemo. https://www.cancer.gov/publications/dictionarie.... Be sure to let his doctors know what is going on so they… read more

posted 6 days ago

I Do Not Know What Symptoms Of Amyloidosis Are: I Have AFBIB Too And Often Feel I Have Long Covid. How Can I Judge What Is Going On?