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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Amyloidosis Symptoms Keep You Up At Night?

By A MyAmyloidosisTeam Member 37 answers

What Are Your Top Tips For Dealing With Amyloidosis In The Heat?

By A MyAmyloidosisTeam Member 10 answers

How Does The Cold Affect Your Amyloidosis?

By A MyAmyloidosisTeam Member 36 answers

So How Do You Fight The Loneliness That Comes With Amyloidosis?

By A MyAmyloidosisTeam Member 31 answers
807 questions

Treatment For Amyloids In The Scalp, Tendons Etc Most Welcome

A MyAmyloidosisTeam Member asked a question 💭
KESGRAVE, IPSWICH UK

What’s Your Favorite Olympic Sport To Watch?

A MyAmyloidosisTeam Member asked a question 💭
Nassau county, NY
A MyAmyloidosisTeam Member

I’m in agreement with you John. Totally unnecessary 🤷🏻‍♀️

August 15

What Are Your Top Tips For Dealing With Amyloidosis In The Heat?

A MyAmyloidosisTeam Member asked a question 💭
San Francisco, CA
A MyAmyloidosisTeam Member

Stan, you are d'Man! Stay close with your maker and remind your lord and savior to be on the lookout.

July 23

How Do We Determine What “stage” Of Amyloidosis My Husband Is In?

A MyAmyloidosisTeam Member asked a question 💭
Lewistown, MT
A MyAmyloidosisTeam Member

My Cardiologist and then Dr. Mauer at Columbia Prebestyrian Hospital, NYC

August 19

Will Amvuttra Help Misfolding Amyloid? I Have Wtattr

A MyAmyloidosisTeam Member asked a question 💭
Detroit, MI
A MyAmyloidosisTeam Member

Amvuttra (vutrisiran) is designed to interfere with the creation of amyloid proteins in cells, which can help reduce amyloid deposits. However, it is specifically approved for hereditary… read more

July 18

Amvuttra I Have Wt Attr

A MyAmyloidosisTeam Member asked a question 💭
Detroit, MI
A MyAmyloidosisTeam Member

I wish I could help Joseph. I have hATTR (CM). I’m sure you’ll get some answers soon. In the meantime you can check out the articles on this site. There should be something there for you.

July 18

Does Anyone With Postural Orthostatic Hypotension Still Drive?

A MyAmyloidosisTeam Member asked a question 💭
Nassau county, NY

My cardiologist just recently told me he didn’t see why I wasn’t driving already. No I never passed out sitting down but still uncomfortable with the idea. He said my problem would be when I reach my destination and stand up to get out of the car. With that and the neuropathy in my feet I’m still not sure. I would love to get behind the wheel again. 🤷🏻‍♀️

A MyAmyloidosisTeam Member

I have driving since last September with no problem.I drive less than an hour to my friends or to a club meetings.

July 17

Two Plus Two?

A MyAmyloidosisTeam Member asked a question 💭
Bloomfield, CT
A MyAmyloidosisTeam Member

what is two plus two

July 15

HS ANYONE NOTICED A CHANGE WEHN THEY FIRST STARTED TAKING VYNAMAX?

A MyAmyloidosisTeam Member asked a question 💭
Redwood City, CA

Amyloids

A MyAmyloidosisTeam Member

No noticeable changes but one of my cardiologists bird that my heart wall thickness seems to have decreased slightly. I'm a Happy Camper about that.

July 13 (edited)

Did You Know There Is A New Drug For Amyloidosis Being Reviewed By FDA And Anticipated To Be Approved ? LEQEMBI . Another, - Being Reviewed

A MyAmyloidosisTeam Member asked a question 💭
Loxahatchee, FL
A MyAmyloidosisTeam Member

No I don’t think so. It’s more for Alzheimer’s patients

July 13
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