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I Am Beginning My Sixth Year Post Wild Type Dx. Are There Many Of You Guys Out There With This Longevity, And If So, How Is Your Energy ?
At the end of my 6th year. Have been on VYNDAMAX/ Tafadamis from the 2nd month after diagnosis. I was in the two Trials
I Am Now Sleeping 8-9 Hrs Per Day!! All My Life I Had Only Slept 5-6 Hours Per Day. Anyone Else Facing This Problem?
😹😹😹 don’t mow over Joshua!
Can Vyndamax Harm Me If I've Been Taking It For A Year And Don't Have Amyloidosis? 1 Yr Ago Test Said "probably". Now No Sign???
How did you get on tafafidis without amyloidosis?
Does Anyone Have This Disease In Their Voice Box? I’m Curious, Because That’s Where Mine Is Located
So far it’s been ok, my voice is no stronger but I do have less pain and discomfort after the scraping
What Are The Dangers If Blood Thinners With Amyloidosis
I have to come off blood thinners due to micro bleeds in the brain and am having a closure of the left atrium appendage of the heart to stop clots forming so I don't have a massive stroke
What Does It Mean If The Lambda Value Is 81.3 In The Context Of AL Amyloidosis Cardiac NTpP 770 For The Patient Of AL Amyloidosis, Cardiac?
Haematologic Remission and Organ Response in the case of AL Amyloidosis Cardiac
Dr. Satish
Lambda I believe measures the amyloid concentration. Normal is 5.7 - 26.3. your value of 81.3 is outside of normal. You need to observe the trend. Per my cardiologist, a consistent… read more
Were Any Of You Guys On The 3 Year Clinical With The Drug Called: Helios B? Generic Name Is Vutrisiran. There Were Only 655 Candidates.
My husband has Wild Type - not on the trial either.
Does Following A Special Diet Help Your Kidneys When You Have AA Amyloidosis?
Yes, following a special diet can help your kidneys when you have AA amyloidosis. Here are some key points:
- Protein Intake: People with kidney complications need to watch their protein intake… read more
Does Amyloidosis Always Have Multiple Myeloma As A "partner"?
No, amyloidosis does not always occur with multiple myeloma. While about 15 percent of people with multiple myeloma develop AL amyloidosis, other plasma cell disorders or blood cancers can also lead… read more
Does The Weight Loss From ATTR Wt Level Off At Some Point?
Thanks John. That's good news. I went from 155 pounds and strong to 135 and weak! Good to know I have a shot at getting some of it back, and not being so weak!
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