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Does Wt-attr Amyloidosis Affect Muscle Strength And Flexibility In Your Leg?
Wild-type ATTR amyloidosis (ATTRwt amyloidosis) primarily affects the heart and can lead to conditions like congestive heart failure. While the context provided does not specifically mention muscle… read more
How Long Before Vyndamax Works???? Cardiac Amyloidosis
I have been on vyndamax for almost a year. I noticed an improvement in 2-3 weeks.
Hi. Can You Tell Me If The Side Effects Go After A Time I'm On Vyndaqel 61 Mg. For Last 3weeks Best Wishes To You All Dx.
Hi. Stamford.hope you are feeling better today .yes praying helps a great deal.&trying to be chearfull helps lot Dx😄
This Question Is For Amy Sufferers In England. Have Any Of You Started Recently On Tafamidis? I Was Wondering If Anyone Had As Now Passed.
Thanks Dorothy for your reply. I have been to NAC Royal Free twice now. I had a phone call and a follow up letter to say I would be getting Tafamidis delivered to me every month, so far I have not… read more
Did Anyone Else Ever Feel That During Treatment That It Wasn’t Working Or Doing What It Was Supposed To Do?
Praying for you Mary and hope all is well with your results. 🙏🏾
What Test Are Crucial To Get In Order To Start Treatment For Cardiac Amyloidosis? The Earliest Apts I Could Get Is 10/23 & 11/18
I was diagnosed in March & they decided to do nothing except recheck in a year. I’ve searched for new doctors & still have a 2-3 month wait
Sheldon knows , I think he knows more about this awful disease than most doctors!!!! I always feel better after I hear from him.Joe
Does Anyone Experience A Lot Of Swelling After Exercise??
Been exercising for a couple of days and seems like I have excess fluid in legs now.
I bet they will. My insurances are Medicare and CHAMPVA which is Tricare. Tricare picked up everything Medicare didn't cover.
So How Do You Fight The Loneliness That Comes With Amyloidosis?
The friends were there when you were healthy and could do things now I find those people scarce. I guess in times of need you find out who you can really depend on.
Good
Treatment For Itchy Scalp Caused By Amyloid Fibrils.
To manage itching caused by amyloid fibrils affecting the scalp, the following treatments can be helpful:
- Steroids: These are inflammation-reducing drugs
- Antihistamines: Allergy medications that… read more
Which Amyloidosis Symptom Surprised You The Most?
Right there with you
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