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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What's On Your Holiday Wish List That Could Improve Your Life With Amyloidosis?

By A MyAmyloidosisTeam Member 41 answers

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

By A MyAmyloidosisTeam Member 16 answers

What Lessons From Your Amyloidosis Experience Are You Applying In 2024?

By A MyAmyloidosisTeam Member 33 answers

How Does The Cold Affect Your Amyloidosis?

By A MyAmyloidosisTeam Member 36 answers
815 questions

Are There More ATTR Wt People In The Edmonton Alberta Area Besides Me?

A MyAmyloidosisTeam Member asked a question 💭
Edmonton Alberta Canada

Does AL Amyloidosis Make Asthma Worse?

A MyAmyloidosisTeam Member asked a question 💭
London, Ontario, Canada

I have AL Amyloidosis (Digestive and Kidney) and Asthma. I am on Daratumabum, after almost a year of chemo, for maintenance. Recently my asthma has become worse with an ongoing productive cough. No Covid or virus infections.

Does Developing A Large Boil That Needs Surgery To Remove Have Any Connection With The Wild Type Amyloidosis That I Have?

A MyAmyloidosisTeam Member asked a question 💭
Columbus, OH
A MyAmyloidosisTeam Member

Eric my friend, we are all in this group together for mutual support. Any help I or anyone one of us can provide to any others in the group, is a blessing.

February 10

Does Amyloid Put On Weight Around The Middle.

A MyAmyloidosisTeam Member asked a question 💭
Birmingham, UK
A MyAmyloidosisTeam Member

Amyloidosis can lead to weight gain, particularly when it affects the heart and leads to congestive heart failure (CHF). In CHF, the heart doesn't pump blood effectively, causing fluid buildup in the… read more

August 1

Feeling Ok

A MyAmyloidosisTeam Member asked a question 💭
COCONUT CREEK, FL
A MyAmyloidosisTeam Member

This made me laugh, so I decided to share it. I am hoping he is right this year!

February 3

Where Can I Read Community Guideline? Once I Could Read It In My Notifications.

A MyAmyloidosisTeam Member asked a question 💭
Japan
A MyAmyloidosisTeam Member

You can read the community guidelines on the MyHealthTeam website. Here is the link to the community guidelines: [Community Guidelines : MyHealthTeam](https://myhealthteams.freshdesk.com/en/support/..read more

July 31

Tafamidis

A MyAmyloidosisTeam Member asked a question 💭
Dallas, TX

Anyone out there on tafamidis? Is insurance paying?

A MyAmyloidosisTeam Member

Tafamidis is a medication used to treat hereditary transthyretin (hATTR) amyloidosis. Here are some key points about tafamidis based on the knowledge base:

- Function: Tafamidis is a selective… read more

July 29

Can I Have The Latest Information On A My Locks Is Plase?

A MyAmyloidosisTeam Member asked a question 💭
Potosi, MO

Continue With Amyloid Sis Information Pkease

A MyAmyloidosisTeam Member asked a question 💭
Potosi, MO

Hello. Has Anyone Ever Just Had Amyloid In Wrists? Dr Found Amyloid In CTS Biopsy But Do Not Feel Other Symptoms.still Waiting For Type,54yr

A MyAmyloidosisTeam Member asked a question 💭
Cleveland, OH
https://symptoms.still
A MyAmyloidosisTeam Member

It's possible to have amyloid deposits in the wrists, particularly in cases of carpal tunnel syndrome (CTS). Amyloid fibrils can become stuck in the tendons and tissues, causing inflammation and… read more

July 25
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